World Hemophilia Day is observed every year on April 17th to raise awareness about hemophilia and other bleeding disorders. This year, in 2023, the day holds special significance as it marks the 33rd anniversary of World Hemophilia Day.
Theme:
This year, in 2023, the day holds special significance as it marks the 33rd anniversary of World Hemophilia Day. The theme for World Hemophilia Day 2023 is “Adapting to Change: Sustaining Care in a New Era”. The theme of this year’s observance emphasizes the need to adapt to change and to ensure that people with bleeding disorders receive the care they need, even in the face of new challenges.
What is Hemophilia?
Hemophilia is a genetic bleeding disorder that impairs the body's ability to clot blood, leading to spontaneous bleeding into joints, muscles, and organs, which can cause significant pain, disability, and even death. The disorder primarily affects men, and there is no cure for it. However, with proper treatment and care, people with hemophilia can live long, healthy lives.
Significance:
World Hemophilia Day aims to increase public awareness about the challenges faced by people with hemophilia and other bleeding disorders and to advocate for improved access to care and treatment. This year’s theme emphasizes the need to adapt to the changing world and to ensure that people with bleeding disorders receive the care they need, even in the face of new challenges.
Due to the COVID-19 pandemic, many people with bleeding disorders have had to adapt to new ways of receiving care and treatment, such as telemedicine and home infusion therapy. These changes have highlighted the need for increased access to care and support for people with bleeding disorders, particularly in low- and middle-income countries, where access to treatment and care can be limited.
History:
To mark World Hemophilia Day 2023, organizations around the world are holding a range of events and activities, including educational webinars, blood drives, and fundraising campaigns.
These activities aim to raise awareness about hemophilia and other bleeding disorders, highlight the challenges faced by people living with these conditions, and advocate for improved access to care and treatment.
